Friday, 29 November 2024 from 14:00 to 18:00 (CET)

The BEAT-PCD patient conference will take place online and is organised jointly by patients with PCD and their families, researchers and clinicians. We aim to provide up to date information on the basics of PCD, living with PCD, research updates, treatments for PCD as well as learning from others experiences of PCD. This conference provides an opportunity to meet other people with PCD and contact local patient organisations.

The agenda can be downloaded here

Registration is opened on the Eventbrite page (click here)

Instructions on how to turn on the automatic translation within Zoom is available (click here)

More information about this year and previous years patient conferences can be found on the dedicated page

The European Lung Foundation (ELF) Bronchiectasis Patient Conference will return on 23 March 2024, following the success of last year's event. 

This free online event will be beneficial for professionals to attend and is open to anyone interested in learning more about bronchiectasis. It will provide insight into the latest clinical findings, treatment and research, alongside real-life patient stories, plus resources and information to help patients live their life well.  

The conference has been developed with and supported by EMBARC, a pan-European network and the ELF Bronchiectasis Patient Advisory Group. A live transcription service will allow participants to generate captions in more than 50 languages.

Please promote this event to your network and to friends, relatives, family doctors, clinicians and anyone you feel would be interested in finding out more about bronchiectasis.

click here to register

After a successful first patient conference in 2022, the BEAT-PCD patient conference will take place again this year online on Tuesday November 21st at 14:00 CET, organised jointly by patients with PCD and their families, researchers and clinicians.

You can register for free here

We aim to provide up to date information on basics concepts about PCD, treatments and care in PCD as well as learning from others experiences of PCD.  This conference will also provide an opportunity to be updated on ongoing research, meet other people with PCD and contact local patient organisations.

All presentations will be held in English, however we aim to provide the slides at the beginning of the conference in English, German, French and Spanish, on our website. In addition, we will use an AI closed caption software that translates English in many languages, to support joiners from several countries. We will share instructions at the day of the conference. Please keep in mind that the software is imperfect and cannot always pick up words and phrases correctly. We cannot check and correct some of the translations, but we still hope it will allow more people to follow the talks and discussion.

The agenda can be downloaded here (English)

Agenda également disponible en Français ici

Das Programm gibt es hier auf Deutsch

Programa disponible aquí en español.

World Bronchiectasis Day is held annually on the first of July. Each year, organizers from around the world coordinate activities to increase awareness for bronchiectasis in hopes of identifying the many undiagnosed patients living with bronchiectasis. World Bronchiectasis Day is organized by an international planning committee co-chaired by Tim Aksamit, MD, Medical Director of Bronchiectasis and NTM 360 at the COPD Foundation, and Professor James Chalmers, MBChB, PhD, EMBARC Chair and British Lung Foundation Chair of Respiratory Research, University of Dundee. The global planning committee comprises patient advocates, representatives from collaborating global patient advocacy organizations and professional societies, and leading experts. Its aim is to raise global awareness, share knowledge, and discuss ways to reduce the burden of bronchiectasis for patients and their families worldwide.

Register here

This event will take place on Friday 30 June at 15:00-16:00 British Summer Time.  In the run up to World Bronchiectasis Day (1 July), ELF want to raise awareness about bronchiectasis around the world.

You can submit your questions to a panel of bronchiectasis experts when you register for this free event.

The experts will answer as many of these questions as they can during the 1-hour webinar. 

The webinar will be recorded and made available on the ELF website after the event.

The first ever ELF-EMBARC Virtual Bronchiectasis Patient Conference will take place on Saturday 27 February 2021. The conference will give people with bronchiectasis and their families and friends an opportunity to hear patient-focused talks. Talks will be delivered by expert healthcare professionals in the field and individuals with bronchiectasis.

Talks will cover the following topic areas

Basics of bronchiectasis

Treatment and self-management

Latest research

COVID-19

The conference is free and open to anyone. All the talks will be in English but we aim to host some smaller discussion groups in different languages during the day. There will also be lots of opportunities to ask questions throughout the day.

For additional information and registration details, click here.