3rd BEAT-PCD meeting in collaboration with ERN LUNG

Hosted by Antonio Moreno-Galdó at Vall d'Hebron Institut de Recerca (VHIR), Vall d'Hebron Hospital Universitari, Vall d'Hebron Barcelona Hospital Campus, 08035 Barcelona, Spain.

Meeting Agenda

12:00 - 13:00 Lunch time

13:00 - 13:30 Welcome to BEAT-PCD / ERN LUNG meeting and Patient Perspectives

(Chairs: Heymut Omran & Claudia Kuehni)

Presenters: Trini Lopez Fernandez & Lucy Dixon

13:30 - 14:00 Plenary Lecture “ Milestones of the PCD research community”

(Chairs: Mieke Boon & Katie Horton)

Presenter: Eric Haarman

14:00 - 15:00 ERN-LUNG PCD Registry Updates - General Overview

(Chairs: June K. Marthin & Petra Pennekamp)

nNO study (Johanna Raidt/Heymut Omran)

Genotype/Phenotype study (Johanna Raidt/Heymut Omran)

Siblings study (Panayiotis Kouis)

Exacerbation study (Pinelopi Anagnostopoulou)

Future studies - Discussion

15:00 - 15:30 Coffee break

15:30 - 15:50 Update on Clinical Trials Network (CTN), ongoing and planned clinical trials (Chairs: Jobst Röhmel & Eric Haarman)

Presenters: Kim Nielsen & June K Marthin

15:50 - 16:50 BEAT-PCD led projects updates

(Chairs: Myrona Goutaki & Adam Shapiro)

Launch of CiliaVar database (Suzanne Crowley & Hannah Mitchison)

Upper airways disease in PCD, EPIC-PCD study (Yin Ting Lam)

COVID-PCD study (Leonie Schreck)

COS consensus (Eric Haarman)

16:50 - 17:00 Closing remarks (Amelia Shoemark & Antonio Moreno)

17:00 - 19:00 Wine reception

A PDF version of the schedule is available here.

Register your interest here: PCD annual meeting (in person event) Tickets, Sat 3 Sep 2022 at 12:00 | Eventbrite