What is this talk about?
When setting up a participatory cohort study in PCD, there are many aspects to consider:
Who should be invited to participate?
How can people participate, and will they participate?
How to involve patient representatives?
How long should the study last and what data should be collected?
How will the results be communicated?
Such questions must be considered before setting up a study to make sure that research questions can be answered with the least possible systematic bias. Dr Pedersen will talk about experiences from setting up the COVID-PCD study, an international participatory cohort study, and describe some results of the study.
About Dr Eva Pedersen:
She is a postdoctoral researcher at the University of Bern. Dr Pedersen has a master’s degree in public health from the University of Copenhagen and a PhD in epidemiology from the University of Bern. During her PhD, she helped setting up the Swiss Paediatric Airway Cohort (SPAC), a national clinical cohort of children with respiratory disease. Since April 2020, her research is focused on PCD and with Prof Claudia Kuehni she set up the COVID-PCD study.
https://covid19pcd.ispm.ch/en/
Registration:
The Meeting link will be sent out 24 hours before the event.
