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BEAT-PCD ERS CRC WP3 call with PCD support groups and ELF


We would like to invite you to the next online meeting of WP3 of the BEAT-PCD clinical research collaboration on Friday October 29th at 17:00-18:00 CET.

At this meeting, we would like to update you and get your feedback about the different ongoing and planned patient engagement activities of the BEAT-PCD network.

17: 00 Welcome and introduction about the patient engagement activities of BEAT-PCD- Jobst Roehmel

17:15 Patient education needs survey- Laura Behan

17:30 Research priorities for PCD- Myrona Goutaki

17:45 COVID-PCD study- Eva Pedersen

The call is organized by the WP3 chairs and ELF and every interested person with PCD or parents of children with PCD are invited to participate. All presentations will be held in English.

To join the call use the following link:
https://unibe-ch.zoom.us/j/65011551017?pwd=bitnWEZxZkhiQnVhbUpEUjVpNlZSZz09

Meeting ID: 650 1155 1017
Passcode: 671400

For more information contact: Myrona Goutaki myrofora.goutaki@ispm.unibe.ch and Jobst Rohmel jobst.roehmel@charite.de