Join us for the ERS CRC Inaugural Online meeting at the 10th September 13:00 CET/ 12.00 UK time.

Please register for free here.

BEAT PCD meeting agenda

13.00 (CET) - Welcome and meeting rules (CHAIRS Amelia Shoemark & Myrona Goutaki)

13.05 - Introduction to the BEAT PCD ERS CRC

13.20 - 5 min summary from each work package lead followed by questions and discussion at the end of all presentations

14.15 - Break/ Group discussions

14.45 - Highlights from the ERS meeting (CHAIR Jane Lucas) 

Primary ciliary dyskinesia and non-CF bronchiectasis in the 100,000 Genomes Project - G. Wheway (Southampton, UK) 

Severity of Bronchiectasis and Lung Functions Related with the Genotype of Primary Ciliary Dyskinesia Patients - N. Emiralioğlu (Ankara, Turkey) 

Comparison of patient care pathway between primary ciliary dyskinesia and cystic fibrosis - R. Epaud (Creteil, France) 

Anxiety and depression in Dutch patients with Primary Ciliary Dyskinesia: Associations with health-related quality of life - M. Verkleij (Amsterdam, Netherlands)

16.00 - Key note speakers (20min each) (CHAIR Claudia Kuehni) 

Overview of EMBARC CRC activities– James Chalmers 

Overview of ERN-Lung PCD core activities- Heymut Omran

16.40 Patient led research (10 minute talks including questions) (CHAIR Claire Hogg) 

Patient involvement in research- Lucy Dixon 

COVID-PCD study - Claudia Kuehni, Eva Pedersen

17.00 Meeting close and informal discussion